Early Warning Signs: The Autism Files
If your child has Autism Spectrum Disorder (ASD) early diagnosis is very important.
Why is it important?
Because intensive early intervention is effective for young children with ASD (the window of opportunity is approximately the ages of 2 to 6) and the earlier the diagnosis and treatment, the better the prognosis*.
My son was diagnosed with autism soon after his third birthday but when I look back, the signs were there shortly after birth. He was a difficult baby and a difficult child – beautiful and wonderful, but difficult. The nurses in the maternity ward could not believe the noise a 3 day old baby could make (crying for hours while most of the other newborns were peacefully sleeping). Most babies settle after a feed – Michael had difficulty feeding and often cried more after a feed.
Doctors blamed it all on GORD (gastro-oesophageal reflux disease) or heartburn and to some extent they were right – Michael did have reflux and there was some improvement when medication was introduced for GORD. But we still had to deal with regular screaming fits, often a couple of hours after he had fallen asleep. Michael would wake up crying most nights in his first 9 years (he is now 10) – he would wake up scared and inconsolable, often sweating and heart racing.
Michael did not respond to his name until he was nearly 4- it was as if he was deaf (and we did get his hearing tested, just in case). People would wave at my son, but he would never wave back (not until about the age of 5). He would not point or make meaningful gestures or ask for things (the way he got my attention was by crying or screaming).
Michael had an excellent memory and an extensive vocabulary from a young age, but there was almost no communication. He would repeat huge chunks of speech from books, videos, and people, but had no idea what it meant.
He had a very strange way of playing. He would line up toys, categorise toys, spin wheels and parts of toys for long periods of time as if studying the mechanism of the toy. He would spin around on chairs or on his feet and laugh hysterically. He was obsessed with spinning fans, switching lights on and off over and over again, running taps, flushing toilets and other forms of moving water.
His behaviour would become increasingly odd when he was stressed (a new place, an overcrowded shopping centre, birthday parties etc.). We visited a friend one day (somewhere he had never been before) and after half an hour Michael proceeded to walk backwards through the whole house. He would do running circuits around our house when stressed. Repetition was Michael’s best friend.
Michael was an extremely limited and fussy eater with rigid rules (sandwich must be cut exactly in half, no foods must touch each other, all foods eaten separately – sandwiches would be carefully dismantled and eaten bit by bit, very limited number and types of foods, eating the same foods over and over for years). Deviations from the food rules would result in tantrums from hell and numerous circuits of the house.
Michael would avoid looking people in the eye and often used his peripheral vision (would ride a bike or run while holding his head on a right angle to his body – he never ran into anything)!
Michael hated places that create sensory overload, especially shopping centres where there is too much noise, too many smells, too many people, too many things! Next time you are shopping and standing at the checkout, take stock of all the sensory stuff happening at the counter (ringing bells, smell of food mixed with cleaning products, pushy people with body odour or too much perfume, flicking fluorescent lights etc. ) and multiply what you experience by a factor of 10 to 20, and that will go a small way to your understanding of what a person with ASD has to put up with when going out.
Michael had other sensory issues. He was sensitive to sounds (vacuum cleaners, hand driers, unexpected noises), smells, light touch (he loved heavy touch and big hugs). We had huge problems with things like washing hair, cutting hair, cleaning teeth.
Michael also had a range of physical issues that are signs of ASD. He had a rather large head circumference (and research has shown that accelerated head growth is an indicator of autism) and he had issues with balance and coordination that became increasingly obvious after assessment by occupational therapists.
I didn’t think Michael had autism. My mother asked me to watch a show about autism on the television when Michael was two. I wondered why she wanted me to watch it. Mum knew a lot about children, having four of her own and having also worked with children and orphans as a mother-craft nurse. She knew that something wasn’t quite right.
As a psychologist I had briefly studied autism at University (about 10 minutes in a Developmental Psychology lecture) and the presentation was all about severely autistic boys who couldn’t even hug their parents (in fact most autistic children are not averse to a hug). I did not relate that lecture to my child one little bit.
Parents who are concerned about their child’s development should consult with their GP or paediatrician. Many of the early warning signs for ASD are not specific to ASD and a comprehensive assessment is required to identify any problems.
Parents (and other family members) know their children better than anyone else. If you feel something is not quite right, than you should follow your instincts and seek out assistance. It should be noted that doctors and paediatricians do not get it right all the time.
My boy’s paediatrician thought three years old was too young for a diagnosis (but best practice says diagnoses can and should be made much earlier). I had to really convince Michael’s doctors that there was an issue to be addressed.
Michal received intensive early intervention at the AEIOU and is now doing very well, attending a mainstream school and doing above average academically. He has difficulty with social issues but continues to improve.
Follow this link for more information on the early signs of autism.
* Early intervention is optimal, but improvements can also be made in the later years (it is never too late to intervene).
18 thoughts on “Early Warning Signs: The Autism Files”
Gabrielle, you have all my admiration for writing about it, for following your instinct (we should all follow our instinct), for fighting for your boy and for writing so touching poetry. Many stars!
Thank you very much Benedicte – happy mother’s day in Canada 🙂
Gabrielle, I thought you might find this interesting http://2guysphoto.wordpress.com/2011/05/07/through-the-eyes-of-a-child/#more-1426 Have a wonderful Mother’s Day!
Wow thanks for the link slpmartin – that kid sounds just like Michael 🙂
Editing notes to self – issues with tense, missing stuff (stimming, social avoidance).
I read that there is a new screening test being developed that can predict autism quite accurately by simply having the parents mark off a checklist in the pediatrician’s office before the child’s first birthday.
Thanks for the link squirrel – they have developed a few screening instruments which look promising (maybe some false positives, but better that than not identifying the children at a young enough age). The three example questions all applied to Michael before age 1.
Your son is exactly the same ( well we now that everyones different especially on the spectrum) but I can really relate to you and thanks for the blog its great to know we are not alone
Thanks Kellie for stopping by and commenting – it is good to know we are not alone 🙂
Have you read ”The Brain that Changes Itself’, Gabrielle? ASD is not specifically covered in the book, but the fascinating subject of brain plasticity is and from what you have said here it seems that early intervention is critical to making the most of a period of optimum brain plasticity; but it’s interesting that you also say that it’s never too late to intervene – which is what the studies of Norman Doidge and his colleagues seem to bear out. It’s amazing to read of the successes of organizations such as AEIOU in helping affected children, such as Michael, integrate into mainstream schools.
I haven’t read that book bluebee but I have read a number of studies on brain plasticity (even in the elderly) that are very promising – that is probably why early intervention is so effective. The AEIOU is fantastic and now there are several centres in Queensland (where there was only the 1 new centre when we went there).
As always Gabe… this is brilliant! Such a great resource you are creating for people.
Thanks Graham – we’re slowly getting there 🙂
Your autism files always offer such a fascinating glimpse into the ways that the mind and personality work and their mystery too.
Thanks Aletha 🙂
I think we can learn a lot about not just autism but about ourselves from these enlightening posts. I also think that you are making a difference and raising awareness. Thank you, Gabe!!
Thanks Selma 🙂